JGamer

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See, that’s what the app is perfect for.

Sounds perfect Wahhhh, I don’t wanna
pandaspansawareness
neurodivergent23dnp

Neurodiversity isn’t just autism

It’s Tourette’s

  • It’s Sensory Processing Disorder

It’s ADHD

It’s auditory processing disorder

It’s OCD

it’s dyspraxia

  • It’s dyscalculia

It’s dyslexia

Its schizophrenia

It’s intellectual disabilities

  1. It’s Down syndrome

It’s epilepsy

It’s executive dysfunction

It’s irlen syndrome

It’s ALS

It’s stroke survivors

It’s Non verbal learning disorder

It’s working memory deficit

It’s bpd

It’s bipolar disorder

  • It’s personality disorders

It’s depression

It’s anxiety

It’s ODD

Its kleptomania

Its many many many more things whether it be to do with movement, learning, sensory,memory, sensation,emotion , thoughts , social skills or anything

feel free to add more

wetwareproblem
defectivegembrain

like even if someone’s completely nonverbal, they can’t write or type or sign or use PECS or anything, and even if their behaviour is hard to interpret, that doesn’t mean they don’t have anything important to say or you shouldn’t try to understand them as much as possible or that anyone else can ever truly be their voice. they are an individual, a full person and they should be treated as such.

candidlyautistic

If you don’t understand why this is so important, you need to familiarize yourself with the incomparable Carly Fleischmann, who was entirely “non-communicative”… until she wasn’t. And lo and behold even when she couldn’t make people understand her, she could understand them. This is why you presume competence!

autismalatediagnosis

It hurts to think how many kids, teens, and adults are out there, hearing what’s going on around them when people assume they don’t understand.

The only comparison I have is when I have my nonververbal episodes and big shutdowns but that comes nowhere close to a life-time of it.

Carly is amazing. She’s funny and adorable and smart. I follow her on Facebook. I do recommend looking into her. To everybody. But especially those who assuming no apparent communicative skills = no listening comprehension.

I might not be making sense. Basically felt the need to reblog.

pixiesky

“The only comparison I have is when I have my nonververbal episodes and big shutdowns but that comes nowhere close to a life-time of it.”


!!!!!!!!!!!!!


Thank you!!!! for understand that experiencing having some time of not talking is not at all same as being nonverbal whole life. never see anybody say admit to this ever .





so so so many People more say - “I’m non verbal but forced to be verbal”. and even worse, recently seen person Tag a thing as nonverbal was about person not liking how person-voice — [Word not on communication device meaning how feel in person-ear ?] … showing just how little People understand . just. No. that is not right. that is not right. not Okay. so hurtful me cry tears of frustrated hurt so Much again again again feel like need to Stop! be on internet need to put away shut down remove me tumblr for how how much hurt me to see again again again People appropriate/hijack the nonverbal label more more more awful bad feelingS.


have seen that as more autism-People change real-used meaning of nonverbal label from can not talk to can talk but is “ just ” difficult to talk , People have more more believing all People who claim can not talk are just making choice to decide to not talk and can be force made to talk


this this make more hard to get People to believe in the need for AAC and make it a required for person to REALLY not be able to talk before Okay use AAC. this [ Word not on communication device meaning opposite of follow ] to demanding prove it is real not faking legitimate in-ability to talk before anybody accept use of AAC. and helps legitimize limitting AAC to only those People who “need” it .




if helps, take this as a legitimately ( full- time, officially diagnosis ) nonverbal person me saying not only is it VERY OKAY to decide should not or do not want to use body voice … but telling People so and then using AAC really helps People like me. saying can talk and making choice to use AAC for any reason, include talking is too difficult and “ just ” not wanting to talk, help make using AAC seem more— normal good cool right healthy possible (? ) ( Sorry not know what Word is right meaning of what me try to say )

snakedance

Friendly reminder

undeterr-ed

“Doing your best” does not mean working yourself to the point of a mental breakdown.

vastderp

this one still smashes me in the face ten times a year. do not ignore pain, it’s no longer your best at that point

xovortex

it’s no longer your best at that point

sinnaisanemotionalman

@eighteenbelow

eighteenbelow

Thank you for the reminder :D

snakedance

You can’t do someone else’s best.

strangerdarkerbetter
heyatleastitsnotcancer

When someone is struggling and you respond with “at least you have x or y and I don’t”, you are dismissing that person’s struggles a bit. Yes they may have a partner or stable living situation or what not but that doesn’t mean they automatically have it better than you.

It doesn’t even matter if they do since there is no hierarchy of suffering. It’s the same as “at least it’s not cancer.” It’s harmful and dismissive and elitist. Please stop doing this. We need to treat each other better than this.

kittyseeker

I suck at words. So when someone tells me something bad that’s going on with them, I generally say “that’s rough” or “that sucks” accompanied by a headshake.

Because I want that person to know, “I hear you and you truly seem to be dealing with something terrible” and nothing else invalidates how much that particular struggle just utterly sucks.

Our struggles aren’t a competition. Be supportive.

heyatleastitsnotcancer

That’s what people usually want to hear. They just want to be supported and know someone understands.

k-pagination

Autistic community issues: Gatekeeping edition

k-pagination

Hi. This is re: the special interest terminology kerfluffle. I am an autistic person with ADHD. I have a request. Could you stop telling me that I have to use two different words to describe the same experience I have that I have no idea which “diagnosis” it comes from? (By the way, brains are not partitioned like that, so my neurology is affected by both, sometimes in very interchangeable ways that you don’t know which one is which!)

Related - the autistic community, as @alliecat-personpoints out here - has a pretty long history, some of which I have put together at @ourautistichistory​, and some of which is probably lost as domain names expired or the list servs went defunct. But the moderator of @actuallyadhd​, who has ADHD, has been involved with list servs and later platforms of the autistic community since 1994. She is an autistic cousin, which is a decades-old term that refers to someone “who is not NT, is not quite autistic, but is recognizably “autistic-like” particularly in terms of communication and social characteristics.”

To ignore that fact, along with @alliecat-person​‘s note that these kinds of words have not been considered exclusive to the autistic community from the start - which is roughly three decades ago - is negligent. A community should know its history, and we need to know our history to work for change. 

And it tells people that we are not a community that welcomes people unless they share our specific neurotype. It tells many people who are wondering if they are autistic that we are a community who will not welcome them. That may make them afraid to approach us, or learn more about autistic community and autistic culture. It tells people we are a community who is willing to gatekeep, and that is not what I want people to think of the community I love and fight for.

strangerdarkerbetter
bitterautistic

It’s really not that hard to give your autistic child privacy and respect in regards to random people you interact with in public as well as with friends and acquaintances. Autistic children are allowed to be autistic in public without you disclosing their whole medical history or their personal information. Sure, people may not understand behavior that’s different from the “neurotypical standard” but that doesn’t mean the child has to adjust or that you have to explain everything just for some random person’s “comfort.”